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Patient Health Information for Future Research: It’s your choice!

The use of patient health information for research

Mater Health Services, in partnership with Mater Research, is committed to improving the health practices and quality of care provided to patients through ongoing research. Together we collect and analyse patient data to improve patient health outcomes and service delivery. This information is collected and stored in compliance with all relevant privacy legislation and guidelines.

What information is being collected?

Mater Health Services collects patient health information including personal information (such as age, date of birth) and medical information (such as illnesses, conditions, and treatments) including patient medical history and test results.

Will my name be published?

No. Mater published research results will not include identifiable information.

Will I be contacted?

We sometimes use patient data to identify which patients may be eligible for research projects. If you are eligible, a researcher or Mater staff member may contact you to ask if you would like to participate in research. You never have to participate in research if you do not want to.

Are there risks?

There is no risk to your health care or treatment by consenting to your health information being used for research purposes.

There is minimal risk to your privacy as any researchers wishing to use your health information for research projects must satisfy the Human Research Ethics Committee requirements and agree to protect your privacy under the relevant legislation and guidelines. Research is strongly monitored by Mater.

Benefits

Your health information could be used for future research into improving the health practices and quality of care provided to our community. Research can also lead to better understanding of diseases and improved treatments.

Participation is voluntary

If you agree to your health information being used for future research you do not need to do anything.

Will this affect your care?

Your care and treatment will not be affected, regardless of whether or not you choose to participate.

Can I change my mind later?

Consent can be withdrawn at any time by contacting the Mater Privacy Office by email, facsimile or post.

Please provide your full name, date of birth, address and phone number so that we can identify you and update your health record.

If you do not wish for your health information to be used for research, or have any queries relating to health information collection, access or privacy, please contact Mater Privacy Office by:

Email
privacyoffice@mater.org.au

Post
Mater Privacy Office, Mater Health Service, Raymond Terrace, South Brisbane, QLD 4101

Telephone
07 3163 2666

Facsimile
07 3163 8104

If we do not hear from you, your health information may be used in future research projects.

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